#SEBDareForRare: Wear Your Jeans to Support Our Genes!

Please Join Spoonie Essentials Box, and Rare Disease Warriors World Wide, on February 28, 2018 to raise awareness on World Rare Disease Day!

All you have to do is, wear a pair of your favorite jeans to support our genes! Then share it on social media with hashtag #SEBDareForRare to show your support for men and women around the globe fighting rare illnesses. 

Xo Team S.E.B

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World Rare Disease Day is an annual observance, hosted by Global Genes, held the last day of February to raise awareness about rare disease, and the daily impact living with a rare disease has on patients and families. Observance begins February 1st, and extends throughout the month, during which rare disease advocates worldwide host awareness and fundraising events. Please join patients, advocates, caregivers, researchers, physicians, policy experts, industry experts, and the Global Genes team in raising rare disease awareness. 

Global Genes®  is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®. What began as a grassroots movement in 2009 , with just a few rare disease parent advocates and foundations , has since grown to over 500 global organizations.

To Learn About More Ways to Get Involved Visit the Global Gene website.