SEBNews:Chronically-ill Terminally Fabulous Video

-

Comments

Post a Comment

Popular posts from this blog

9 Practical Ways To Support Someone w/ Chronic illness!

-
Image
I'm Britt, I am a member of a tribe of Chronic Illness Warriors that see the road to better health and self discovery differently. We know we are sick, but our care is our choice. I started Spoonie Essentials Box , a monthly self-care subscription exclusively for fighters like me, a year after an epic battle for my life because understanding the value of Self-Care saved me. It brought me to the happiest, healthiest, best version of my life I've ever lived! I have DRESS Syndrome, a rare disease that literally makes my body shut down from certain medical drugs (& chemicals in general), along with Crohn's Disease, Lupus, and a brief relationship with Colon Cancer. As I become more open about my fight, people without Chronic Illness seem to ask me one of two things: 1. What's a cool "gift idea for a sick friend" or 2. "How to better support someone with chronic illness". The further along I get on this journey, the more I understand and ap
Read more

#SEBfamilyStory: Izzy Mejia

-
Image
by: britt renee' I recently had the unique pleasure of visiting with Isabelle "Izzy" Mejia, a founding member of Spoonie Essentials Box. Izzy is a sophomore at  Arlington High School  in Riverside, California. Izzy has  Lupus ,  Juveniles Arthritis , and  Sjogren's Syndrome .  Izzy, her mom Elaine, and I talked for about 4 hours on Sunday evening. I couldn't help but be in awe of Izzy, she is an amazing intelligent, funny, and unbelievably kind young person. We talked of our shared experiences with “Fighting the Wolf” aka Lupus, a phrase Izzy coined herself because the “butterfly” analogy just wasn’t her thing. Izzy reminds me of a person much older than herself, I suppose this is likely another byproduct of living with a chronic illness at such a young age. You are forced to mature before you’re ready because the management of chronic illness thrust important life decisions into your lap long before you fully understand what they mean. 
Read more