014: 41 Hours.

Between the dull aching pain of my joints, the searing torture of my intestines, or the ridiculous amounts of legal drugs constantly flowing through my body; I never sleep. You'd think I'd be so grateful that I had more time in a day to accomplish things right? But really I'm constantly walking around functioning like the walking dead. Zombie life is so real, insomnia is one of those side effects of chronic illness no one ever tells you about. No one says "you'll be physically and mentally exhausted, but your body will not sleep".

The worst part isn't that I'm in pain and I can't sleep, the worst part is that I'm awake alone with my thoughts all the time. A never ending stream of consciousness. Our minds can be our greatest assets or our worst nightmares. I try to occupy the hours with writing blogs, reading for my graduate school classes, or binge watching Scandal; but nothing really helps me evade the innocuous thoughts that constantly race through my mind. It never stops. I never shut up. Ask any significant other, any friend or family member, if you're awake I'll usually try and keep you on the phone for as many hours as you'll tolerate me. I know I get annoying at times, my extroverted nature always impelling me to process through my emotions and thoughts out loud. My poor support system constantly subject to me rehashing, overanalyzinh, and speculating on any and everything. Nothing is beyond my curiosity when I should be sleeping. 

I just literally can't sleep and I hate to be alone. To sit too long with myself, my mind will wonder simultaneously to philosophical inquires; as well as securing my grasp on reality. Deciphering between the very real nature of my sickness and the possibility that it is all in my mind. For most times no one can see my pain, but I can feel it. My agony is faceless, the torture is invisible to the naked eye. I literally question whether or not it's really there. The lack of energy I seem to always have. The ache of pain no one can see. It's enough to unhinge even the sanest of people. I've WebMd'd and Googled the symptoms of all of my diseases so many times, I can almost recite the pages word for word themselves. 

I once stayed up for 41 hours. I went to class. I participated in campus activities. I even think I had lunch with a friend that day. I don't think it's the longest I've been up, but it's the longest I can remember being awake most recently. The crazy thing is, I thought it was normal. For the last year I've slept at most 5 hours through the night. I usually sleep somewhere between two and three hours. It wasn't until I was coughing up blood one day that I went to the ER and the mortified look on the attending Doctors face told me, sleeping less than 5 hours a day for over a year is nowhere near normal. She refused to let me leave the hospital until I'd slept. She said her conscience wouldn't allow her to let me leave, to operate a motor vehicle knowing I'd been awake for 41 hours was against her moral compass. 

When I was hospitalized for three months last year, I was given sleeping aides but I figured it was because of the volatile nature of the hospital. Nurses, CNA's, Doctors, and Nutritionist; constantly in and out of my room. But nope, they give them to you because without them, you'll never sleep. No one told me that though. Right now I take ambient extended release tablets so that I will "stay asleep". I actually hate it. I hate knowing that without another drug I can't sleep. Yet another thing I can't do on my own. Another handicap. Another thing that makes me that much more abnormal. 

When do I catch a break? I need drugs to regulate my bodies immune system. I need drugs to keep my liver functioning properly. I need drugs to temper the pain. I need drugs to increase my appetite. I need drugs to sleep now too? Well damn. I guess I have no choice right? Apparently sleep deprivation can actually lead to death, not to mention evidently when you sleep,  your body heals. So my body, the body that needs all the help it can get to heal itself, won't because of all the other medications I take to promote healing. The legal drugs I take to stop the full fledged assault my body irrevocably launches on itself daily. The irony in that alone is enough to lose sleep over. Ha ha, see the pun there? I know I'm corny,  but I laughed.   

I hate it, but I accept it. I set iPhone alarms to take my ambient at 10pm every night. I take a baths with lavender oils to relax me. I drink chamomile tea to calm me. I listen to ocean waves to lull my mind into submission. And eventually I fall asleep. I sleep tranquilly.  Dreaming of a time before my illness. I sleep as sound as the girl I used to be, when I took for granted the peace of mind that comes with a good nights rest. 

Ox.